Peek into my migraine life

I am a migraine warrior

Unfortunately, migraine is a huge part of my life, and has been for about 20 years. I thought they started in my late twenties, and never knew what triggered  the beginning.

But I’ve been doing some research lately, and it’s possible I’ve always had them, but that they looked different when I was a kid. I missed a fair amount of school when I was a pre-teen – not enough to cause problems for me academically or to cause problems for my parents with school administration – because of headaches and stomachaches. The pediatrician told my mom it was “school-itis”. It was true that I didn’t like school then, so maybe he was right.

June was Migraine Awareness Month and I learned a lot from it. I was even able to teach my dad, also a Migraine Warrior, some new information (for instance about kids – if he’d known about that when I was a kid, he probably would’ve taken me to a neurologist when I was 11). (Also, shh, I’m not allowed to talk about my parents online.)

Anyway, I’ve been lucky. I don’t have Chronic Migraine, which involves 15 or more headache days per month. At my worst, I averaged 11 per month. That means I have what’s called Episodic Migraine. I’m also lucky because I’ve never ended up in the ER because of a migraine. I’ve rarely missed a work day. I rarely need to take a break from my life. I’ve become really good at pushing on and forcing the symptoms away until I’m alone or at least done with whatever most important thing needed doing that day. I don’t know why I’m able to do that. Or when. Because sometimes I can’t.

Sometimes I can’t focus on my current writing project. Sometimes I can’t handle people talking at a normal volume. Sometimes I have to skip Taekwondo.

I tried going to a neurologist about 6 years ago. He’d been recommended by my GP, who I liked at the time. We tried a couple of different drugs aimed at preventing migraines, but they didn’t work and had awful side effects. Life-endangering side effects. The last drug exacerbated my Reynaud’s Disease. When I told the neurologist, he explained that exacerbating Reynaud’s was a known side effect of this particular drug and that he didn’t know I had Reynaud’s. It came up in our first appointment.

While still on that last drug, I decided to try acupuncture. I’d been researching it and found a local place that practices what’s called Community Acupuncture. This means they see more than one patient per hour, which allows them to lower the cost per session, which is really awesome when you don’t have insurance or your insurance won’t cover preventive therapies. My research told me that acupuncture has been proven in actual scientific studies to reduce chronic pain.

My neurologist’s reaction? “Call me when you’re ready to try the next drug.”

I haven’t called him again.

acupuncture for migraine

I’ve been doing acupuncture since 2014. It took a while to figure out the points that worked best for me, for there to be a significant decrease in severity and frequency. But we got them down to about 2 headaches per month. It was amazing. I felt like I’d been given my life back.

Unfortunately, it didn’t last. Life circumstances got in the way. My job responsibilities and hours changed, and I was no longer able to travel to my acupuncturist even once a month (they’re 40 minutes away from home and an hour away from work). By the time my hours changed again and I could again commit to once a month, I was back up to about 8 migraines per month. Not as bad as before, but still demoralizing and draining. My acupuncturist changed around that same time, too, and the new one was too gentle. It took me a few months to get up the courage to tell them what had proven to work best for me.

And now I go as often as I can make the time. So far this summer, I’m going about every 10 days. Because of my age and changing hormones (always my biggest trigger), I have good hormone months and bad hormone months, which means there’s a wide range for my migraine frequency. I get between 2 and 7 migraines per month now. I hope that will improve by the end of the summer.

Sure, 5 years ago I thought I’d go for a few months and be cured, based on others I spoke to. However, my body doesn’t work that way. My body needs to be regularly reminded how to heal itself, needs to regularly have my chi pathways reopened.

Are you a Migraine Warrior? What has worked best for you? Tell me about your experience in the comments.

ETA

I’ve had an amazing response to this post through the comments below and emails from readers. I’m sorry that so many of us suffer from this terrible and misunderstood disease.

In case you’d like more information or more support, please check out these links:

Chronic Migraine Awareness, Inc.
CHAMP (Coalition for Headache and Migraine Patients)

And we can sign the Declaration of Rights for People with Headache Diseases from CHAMP.

Bisous and big hugs to all the Migraine Warriors out there!